NERGG Links
Genetic Alliance a coalition of hundreds of genetic advocacy organizations, health professionals, clinics, hospitals and companies, Provides information about support groups.
Genetics Education Materials for School Success (GEMSS) is a new website featuring information that schools can use to support students who have genetic conditions. If you are a teacher, parent, paraprofessional, or have a special interest in genetics and education, visit the site to learn more.
Genetics Home Reference Website provides consumer-friendly information about genetic conditions and the related genes and chromosomes. This website is a resource of the National Library of Medicine.
Genetic Testing for Hereditary Breast & Ovarian Cancer: What You Should Know
Information for Genetics Professionals, through KU Medical Center, is a link to a wealth of information for genetics professionals, educators, and interested individuals, including a comprehensive listing of genetic conditions and national support groups.
National Center for Hearing Assessment and Management, Utah State University, to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention.
National Newborn Screening and Genetics Resource Center provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
National Organization for Rare Disorders: NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
New England Genetics Collaborative: one of seven HRSA supported Genetic Services and Newborn Screening Regional Collaborative Groups. All of the Regional Collaboratives are administered by the National Coordinating Center at the American College of Medical Genetics (ACMG)
The March of Dimes is a national organization providing information about how to have a healthy baby and support networks if there are problems.
The New England Connection of PKU and Allied Disorders (NECPAD) is a non-profit organization that benefits and supports individuals with Phenylketonuria (PKU) and other related disorders and their families. You will find information on various metabolic disorders, activities, support and research.
The New England Consortium of Metabolic Programs is an informal affiliation of healthcare providers, research scientists, and other health industry professionals collaborating to provide the best possible care and resources for patients with inborn metabolic disorders. The website has sections for professionals and families with NBS information, treatment protocols and resources.