617-963-0900 Director@NERGG.com

Hello, NERGG Colleagues!

I hope you continue to be well and are able to enjoy this lovely summer weather.  It’s a great time for walks, picnics, stargazing, and so much more.  In this current time, it’s so important to make lemonade from lemons — literally!

Website Re-Launch:  Please check out our updated website at http://nergg.org.  I think that you’ll find it welcoming and easy to navigate.  Thank you to NERGG‘s Website Committee and consultant Jean Alexander for their hard work and creativity.  It’s a work-in-progress, so there is still more to be done.   If you have questions or suggestions, please let me know.

Annual Educational Conference:  In place of our traditional in-person conference, we will be hosting a virtual online event to deliver timely information about genetic conditions for families, providers, and advocates.  We are just in the planning stages, but we will offer this event over the course of two days, December 3 and 4, 2020.  Each day will be about four hours in length.  Stay tuned for further information.

JULY 15 webinar on Gaucher Type 1

Sanofi Genzyme cordially invites you to a discussion entitled:

Don’t Wait: Help Prevent Progression of Gaucher Disease Type 1
Presented by

Linda Spencer, NP
Pediatric NP, Genetics Children’s Hospital of Michigan

Wednesday, July 15, 2020 at 1:00 PM EDT

Click on the link below to register for this virtual event: URL:

Those are my brief announcements for now.  Stay well and please do keep in touch!