617-963-0900 Director@NERGG.com

Board of Directors

The Board of Directors is the governing body of NERGG and is composed of an executive committee and representatives from each the six New England states. We gather genetics service providers (physicians and genetic counselors), public health officials, and consumers (patients and families) to hear their unique perspectives as we work together to educate providers and the public to improve access to genetic services throughout the region.

Board meetings are held quarterly by conference call and/or Zoom meeting. Members are welcome to attend as non-voting participants. For phone-in or Zoom information for the meetings, please contact Cindy Ingham at director@nergg.org.


  • Wednesday, March 31, 2021, 12 noon – 1:30 pm
  • Wednesday, June 30, 2021, 12 noon – 1:30 pm
  • Wednesday, September 29, 2021, 12 noon – 1:30 pm
  • Wednesday, December 1, 2021, 7:00 pm – 9:00 pm

Contact the executive director at director@nergg.org for dial-in/link information to attend the meetings.


Rare Disease Day  Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease
Sanofi Genzyme is offering a virtual educational event, Pompe Disease: Recognize Symptoms, Diagnose Early, with Dr. Ozlem Goker-Alpan, founder and
The American College of Medical Genetics and Genomics virtual Annual Meeting registration opens January 1.  The pricing will increase after February
Supported by an educational grant from Recordati Rare Disease and presented by VMP Genetics and Postgraduate Institute for Medicine. This
The NERGG 43rd Annual Educational VIRTUAL Conference, co-sponsored with the New England Regional Genetics Network (NERGN), was held December 3-4,
Our inaugural event was held Thursday, May 13, 2021 at 6:30 PM ET, and was sponsored by BioMarin. The Long-Term
In collaboration with our partners, NERGG is periodically offering free webinars on a variety of topics which promote awareness, understanding,
Sanofi Genzyme sponsors an online presentation by Dr. Pramod Mistry about the diagnosis of Gaucher disease on Wednesday, October 20,

Kunal Sanghavi, MBBS, MS, LCGC
Jackson Laboratory for Genomic Medicine, Program Manager – Genetic Counseling
Farmington, CT

Kathleen Swenson, MPH, MS
Boston University – Genetic Counseling Program, Director
Boston, MA

Sam Drazin
Changing Perspectives, Executive Director
Bradford, VT

Maria Gyure, MS, CGC
University of Connecticut – Genetic Counseling Program, Director
Storrs, CT

Gillian McNeil, BS
University of Connecticut
Storrs, CT


CT Practitioner: Lisa Brailey
CT Public Health: Marie Burlette
CT Consumer: Peggy Sweeney

ME Practitioner: Tom Brewster
ME Public Health: Holly Richards
ME Consumer: Abby Pearson

MA Practitioner: David Harris
MA Practitioner: Catherine Nowak (alternate)
MA Public Health: Eirini Nestoridi
MA Consumer: Sophia Zilber

NH Practitioner: Erica Stelmach
NH Practitioner: Lisa Demers (alternate)
NH Public Health: Vacant
NH Consumer: Joanne Huff

RI Practitioner: Kerry Ahern
RI Public Health: Emily Eisenstein
RI Consumer: Tara Hayes

VT Practitioner: Christine Giummo
VT Public Health: Sydney Williamson-White
VT Consumer: Allison Wood