Empower and Inspire: 3rd Annual Virtual Leigh Syndrome Symposium 09/17/24

We are excited to announce our keynote speaker, Sammy Basso! Sammy was diagnosed with Progeria when he was two years-old. Now he is 28, and chose to be a scientist to study his own disease. As a researcher and patient advocate, he will talk about the 25 years of science that is working for a genetic cure and the pivotal role that families and patients had and are having on it.  Agenda for the conference is in progress, please find details and register HERE.

*Please note that not every talk will be recorded, so be sure to register to hear all updates live.

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