Past Sponsored Speaker Series
Sponsored Speaker Series – August 14, 2024 – Free Webinar – 12 Noon to 1pm
Sponsored Speaker Series HPP – March 22, 2024 – Free Webinar – 12 Noon to 1pm
Diagnosis and Treatment of Hypophosphatasia: A physician and patient describe their partnership in treating a rare inherited disorder. Co-sponsored with Alexion AstraZeneca Rare Disease.
For any questions please contact [email protected] or call 508-735-5755.
Sponsored Speaker Series: What’s New in Newborn Screening (GAMT)
June 2023 Sponsored Speaker Series
May 2022 Sponsored Speaker Series
Sponsored Speaker Series – 11/10/21
NERGG Virtual Lunch & Learn An Innovative Payer Partnership for Whole-Genome Sequencing (WGS) in Pediatric Rare Disease Illumina and Harvard Pilgrim Health Care (now “Point32Health”) have partnered on a risk-sharing agreement to open coverage of whole-genome...
May 2021 Sponsored Speaker Series
Our inaugural event was held Thursday, May 13, 2021 at 6:30 PM ET, and was sponsored by BioMarin. The Long-Term Management of Morquio A Syndrome, presented by Dr. Barbara Burton [pdf-embedder url="https://nergg.org/wp-content/uploads/2021/04/Burton-5.13.pdf"...